Blood tests

I haven’t had my regular blood tests (plus Bence Jones) in several months for a variety of reasons, mainly the Covid-19 lockdown, then the slow reopening here in Italy.

On Monday, I finally decided to make an appointment at the lab where I always have my tests done. I went there yesterday morning.

I got there early and had to wait for about 15 minutes. Things have really changed, compared to the pre-Covid era, I mean: a nurse greets all patients outside the lab building and makes the early birds like me wait outside. Much better…I feel safer outside, anyway.

So here’s the new procedure: you wait outside until the time comes for your appointment or until your last name gets called. At that point, you have to rub your hands with disinfectant from an automatic dispenser (I used my own hand sanitizer, though) and then have your temperature taken with a non-contact forehead thermometer.

Inside, in the waiting room, you can’t just sit anywhere, the way it was before. Social distancing is the rule now. Before, there were about 35-40 seats. Now there are 5 or 6; the others are taped off.

Oh, and, of course!, goes without saying, you have to wear a mask at all times, even while you are waiting outside. In Italy, pretty much everyone understands that it has nothing to do with politics (duh), and that it’s just PLAIN STUPID and POTENTIALLY VERY DANGEROUS not to wear a mask.

Besides, in any case, it’s still the rule.

Case closed.

Yesterday morning I was actually wearing two masks–a surgical mask underneath a cloth mask. That is my new norm: whenever I leave the house, go into stores or any type of enclosed public space, I wear two masks, even though the rule is one mask (at least). Stefano wears two masks, too.

Can’t be too safe. I am well aware that I have a weak immune system…no idea what Covid would do to me, and I really don’t want to find out. Neither does Stefano.

Anyway, compared to other countries that have reopened way too soon, Italy, now in Phase Two ( = living alongside the virus), is doing quite well. Covid-19 hasn’t disappeared, but the infection and death rates are way way down. I just hope that people returning from abroad, and tourists of course!, won’t begin spreading Covid-19 here again.

That’s my main worry: Italy was THE first European country to shut down and one of the first to reopen. We don’t want to go through another lockdown. Really don’t. That said, I am comforted by the fact that all the people I have seen out and about here in Florence are wearing masks.

And, you know, life can still be enjoyed, in spite of these restrictions…Perhaps I should have written, “thanks to” these restrictions. We know that wearing a mask, washing our hands frequently, keeping our social distance, and following the rules set by the medical and scientific communities, can keep us safe. I simply would not be able to enjoy being in a non-safe environment right now…with maskless people, for example.

Anyway, to give you a quick example of how life can be enjoyed, Stefano and I have EATEN OUT three times in the past few weeks. Yes, we have eaten out…with friends…in RESTAURANTS. Very exciting, after so many months of being cooped up inside our homes.

I admit, the first time was a bit scary, but we have always chosen places with outside tables…Every member of the staff (from cooks to servers) has to wear a mask, the tables are NOT close together, and so on. It was so nice to eat out in a safe way…

So, it can be done…!

Dexamethasone and Covid-19

I meant to write this post earlier but…stuff happens, such as our blocked kitchen sink pipe (We spent all day Sunday trying to “unblock” it using a bunch of different methods, including a high-pressure cleaner!, but to no avail. So today I’m waiting for the plumber to come fix it…), and I didn’t get to it until now. So you have probably already read about the Dex-Covid-19 connection. I’ll write this bit of news anyway, for those of you who might have missed it.

Last week Stefano asked me if I knew what dexamethasone was. Do I know what dexamethasone is? Hah! You can imagine my reply… 😉 

Anyway, he’d just read the news that Dex, as it’s more familiarly known to us myeloma people, has recently been found to reduce Covid-19 mortality by, drum roll!, a whopping 35% in hospitalized patients who are on ventilators. It’s all here, in this BBC article: https://www.bbc.com/news/health-53061281

Well, it’s good to know that there’s an option out there for very ill, hospitalized Covid-19 patients, even though Dex does come with its side effects (the “Dex days” that many myeloma patients have to endure…).

Still, yes, very good news!!!

Personal note: I’ve slowly been venturing outside the house to run a few errands. I wear TWO masks–a surgical mask AND a good cloth mask made by friends to raise money for the cat shelter (these cloth masks are very pretty, colorful, and full of, what else?, cats!).

So, everything is peachy in my little world…oh, except for the bloody drain pipe in the kitchen! 😉

Stay safe, everyone, and wear a mask!!!

Yesterday I helped save a dog

Yesterday morning I received a whatsapp text from one of my neighbors who had spotted a small, terrified dog on the other side of the tiny river at the bottom of our hill. She took a photo of it and asked if it belonged to anyone we knew. Wait, before going on, I should note that, years ago, my neighbors and I created a whatsapp group that enables us to get in touch quickly should anything happen or if anyone needs anything or whatnot. This group is super useful at times, as it was yesterday, as it turns out…

Some of my neighbors immediately mobilized to help this little dog. They didn’t wait for the municipal police to arrive but got a ladder, lowered it down into the tiny river, really no more than a stream, and carried the dog over to the other side, to safety.

I was still at home when all this happened. But as soon as I got my neighbor’s message and photo, I remembered something I’d seen earlier that morning on Facebook, a desperate appeal posted by a woman whose dog had run off the day before, with her leash on. I took another look at the photo on Facebook and, yes, I was sure it was the same dog.

So I texted my neighbor to tell the policewomen, who had just arrived, to call the FB woman’s cellphone. I then went down the hill to see if I could help. The poor little dog was still terrified, so terrified that she had refused to eat anything, even though she must have been starving. So we (a bunch of concerned neighbors and two lovely municipal policewomen) just stood around, keeping our social distance and wearing our surgical masks, of course, until the dog’s happy owner arrived. All of a sudden, the terrified, motionless little dog became the happiest dog in the world…dancing around and licking her owner, as you can see in this happy photo I took (cutting off the woman’s head, sorry!, for privacy reasons)…

And to think that if I hadn’t seen and remembered the appeal on Facebook, the policewomen would have had no choice but to take that scared little dog over to the municipal kennel, and it might have taken days for them to track down her owner…

I’m soooo glad that didn’t happen.

Anyway, all’s well that ends well. I helped save a dog yesterday, and it made me feel like a goddess for the rest of the day. 😉

Quercetin has anti-myeloma activity

A study from 2016 came to my attention today, thanks to a member of one of the MM Facebook groups to which I belong.

This study shows that quercetin works well both alone AND in combination with dexamethasone. Let’s not forget that it’s a proteasome inhibitor (like curcumin and, in the conventional world, Velcade).

Here’s the direct link to the study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5216736/?fbclid=IwAR2Nk3FwZ3b8MfAqKUNOz1YXfQ6PU2lcQzAN-eGSMWvVBO7dTD9waNpxXn4 

I have to admit that I haven’t taken any quercetin in years, but it looks as though I’ll be putting it back on my “menu” now. For many reasons, not just because of its anti-myeloma activity…

Quercetin is good for a bunch of other things. For instance, it may reduce inflammation, blood pressure, and blood sugar, as well as protect against degenerative brain diseases. And the best thing is that it can be found in many of the foods we eat every day, including (red) apples, onions, cherries, broccoli, and so on. But of course it’s easier to get it in a capsule format…easier, that is, than eating a truckload of red apples every day. 😉 

A bunch of years ago, when I did some research on quercetin, I wrote that one shouldn’t take more than 1.5 grams a day, so please be careful with dosage. Do a search of my blog for more information…

Anyway…good stuff!

Stay safe, everyone!

Terry Golombick’s new website

Now, I don’t usually do this sort of thing, but I’m making an exception today because I have such a HIGH regard for Dr. Terry Golombick. If you don’t know who she is, just do a search of my blog…In a nutshell, she was in charge of the Australian MGUS and SMM curcumin patient trials…so, lots of experience, there…

Terry has recently relaunched her website and is offering consultations specifically for MGUS and SMM folks who live in or near Sydney, Australia. I think it’s WONDERFUL…

Anyway, here’s the link for those lucky Sydney-dwellers: https://www.mgustherapy.com/

But even if you do NOT live in or near Sydney, have a look at her website, which has some very interesting information. For example, how about those three case studies, eh? Nice! 🙂 

Take care, everyone! And…WEAR A MASK!!!!!!!!!!!!!!!!!!!!!!!!!!

P.S. the photo in this post is of a purple Allium (ornamental). It’s so tall…and so pretty…to the point that some of my friends think it’s fake, hehe. Nope, it’s real. And it’s in my garden! BTW, I took this photo from above…

Reaching out to all MGUS, SMM, MM patients and caregivers

Last week I was contacted by Stephen Quinn, a Ph.D. student at Queen’s University in Belfast. He informed me about a study called IMPaCCT whose intent is to look at the effect that the current Covid-19 crisis has had, and is having, on pre-cancer, cancer and rare disease patients and their caregivers. The researchers, which include Stephen, hope to be able to use this data to inform patients and caregivers, as well as publish their findings in scientific journals.

He asked for my help in reaching out to smoldering myeloma and MGUS patients. Of course! So, how can we help? By taking their online SURVEY. I am about to do that, in fact. It should take about 20-30 minutes. No big deal, if we can help others, right? So please do it!

Here’s the direct link: https://www.surveymonkey.co.uk/r/IMPACCTsurvey?fbclid=IwAR0JwWQPa8Md6VjJ_3KBCDBGGdZEClXB77SqK348s7Gh-hDbEns9_B7qgE0

Please note that if enough people respond to the survey, this Queen’s University group will be able to provide pre-publication information to charities/groups so that they can better support their members during these challenging times.

So this is really important. Please take the survey! Thanks, everyone! 

More important news on vitamin D and coronavirus

On March 27, I published a post about some findings of a team from the University of Turin (Italy) showing that low levels of vitamin D might increase:

  1. your risk of being infected with Covid-19
  2. your risk of having complications if you already have the virus

The University of Turin data also showed that vitamin D can counteract lung damage caused by hyperinflammation.

Well, now a research team led by Northwestern University has found a “strong correlation between severe vitamin D deficiency and mortality rates.” Their results are based on data from hospitals in several countries, including Italy.

Incidentally, I got this information from an easy-to-read Science Daily article, which you can check out for yourself at this link: https://www.sciencedaily.com/releases/2020/05/200507121353.htm?fbclid=IwAR20hJJCU7d2WQj27sdIny3UgwYlrKZDlnR6gnbccXrBPiNu6QkSkspKQCk

So it seems as though vitamin D will lower your risk of having severe complications and of dying from the virus…once you’ve contracted it, of course. Here’s an important excerpt from the article: “Not only does vitamin D enhance our innate immune systems, it also prevents our immune systems from becoming dangerously overactive. This means that having healthy levels of vitamin D could protect patients against severe complications, including death, from COVID-19.

According to the lead researcher, vitamin D might actually cut “the mortality rate in half.” Wowsie!

Interestingly, the lead researcher also says that, while vitamin D “may reduce complications and prevent death in those who are infected,” it will not prevent you from actually getting the virus. Hmmm. That doesn’t make much sense to me. I mean, if your body has adequate levels of vitamin D, it should be better equipped to resist against the virus. But…who knows?

Anyway, whatever! I mean, even if vitamin D doesn’t give us the slightest protection from coronavirus, let’s not forget that keeping our vitamin D levels in the NORMAL range is absolutely essential for us myeloma folks. So let’s keep ’em in that normal range no matter what…

That said, please don’t exaggerate with your vitamin D daily intake: too much of a good thing may not necessarily be a…good thing, indeed, it probably isn’t!!!, as I have said repeatedly here on the blog. So please be careful…and don’t overdose!

I hope everyone is OKAY! Stay Safe!!!

P.S. That’s the photo of a flower from my garden…Nothing to do with the post, of course, but…it’s so pretty!

Just a cute cat photo

One afternoon last week Prezzemolo and I were lying in bed, watching a TV series. Okay, okay, truth be told, he wasn’t that interested in the series. He was fast asleep, snuggled up right next to me.

At one point I must have moved and woken him up. He looked up at me reprovingly and then started yawning. I was quick enough to catch almost the entire sequence on my cellphone.

This is one of my best shots.

How about that long tongue???? 😀 

Did I have Covid-19?

A few blog readers have suggested to me, privately, that the awful flu I had back in early January might have been Covid-19. But well before I had read their suggestions, that same thought had occurred to me, too, in the early days of the outbreak here in Italy. So this morning I decided to write a post about it, just for the record.

I certainly did have some of the Covid-19 symptoms, namely:

  • fatigue (probably my very first symptom)
  • sore throat (also an early symptom)
  • terrible intestinal woes (ditto as above)
  • high fever…a very high fever
  • aches, of course
  • nasal congestion
  • cough (see below)
  • and, finally, pneumonia, yes, the interstitial form that is typical of Covid-19

However, it would have been an anomalous case of Covid-19 for the following reasons:

  1. I didn’t infect anyone. A few days after Xmas, Stefano and I drove up to the city of Padova, in the Veneto region, northern Italy, to pick up my brother-in-law and his family. The following day the four of us drove to the city of Ljubljan, Slovenia, where we spent a very nice, long weekend. This means that we all spent hours inside Stefano’s car, talking and laughing, and breathing the same air. When we returned to Padova, my sister-in-law organized a family dinner party. I had begun feeling a bit tired but of course had absolutely no inkling that I was about to get very sick, otherwise Stefano and I would have left immediately for Florence (we left the following day, and then it all “exploded” within 24 hours). This dinner party therefore took place just before I got REALLY sick. Luckily, nobody got ill, not even the grandmother. Now, we all know by now that Covid-19 is extremely contagious, especially for the elderly. Another point: as you may (or may not!) know, Italians are veeeeeery affectionate, big huggers and kissers, which is undoubtedly one of the reasons why Covid-19 spread so readily here in the beginning (nobody is kissing and hugging now, of course!). After my SMM diagnosis in 2005, I cut back on all the kissing and hugging (explaining WHY to my friends), but when the Xmas holidays come around, it’s hard to pull back….So I had kissed and hugged and been in close contact with at least ten people, possibly more, before I got sick. And what about my husband? We slept together the entire time I was sick. Before, during, and after. He never left my side. In fact, I was so helpless that he stayed at home from work for at least ten days to take care of me. But he didn’t develop even the slightest of sniffles. Okay, perhaps he is one of those asymptomatic folks that we’ve heard so much about on the news, but then every single person that I was in touch with in the 10-14 days before I got sick would have to be asymptomatic, too. Hmmm.
  2. My cough was never dry. And that’s one big sign of Covid-19.
  3. My family doctor never mentioned the possibility of my having coronavirus.

In sum, if what I had back in early January was coronavirus, then it must have been a very odd and non-contagious strain.

Can Covid-19 be non-contagious? Well, from all I’ve read about this terrible virus, and I’ve read a lot, that just doesn’t seem likely. I could be wrong, of course. So, as soon as the antibody tests become widely available, I’m going to have one. Boy, it would be such a relief to find out that I actually have those antibodies AND that I survived Covid-19 (AT HOME, to boot!), in spite of my compromised immune system and my asthma.

But, feet back on the ground, I am almost 100% certain that my early January illness, as bad as it was, had nothing to do with coronavirus. For me, therefore, the case is closed, and, at this point, it would be useless to speculate any further until I have that antibody test. But I would like to thank my blog readers for their interest and concern, which got me thinking…

Finally, and obviously: as soon as I have any test results, I’ll post them. It won’t be for a while, for sure, so don’t hold your breath. 🙂

P.S. I thought I’d add the photos of 1. a swallowtail butterfly drinking nectar from my pansies, and 2. a tulip from my front yard. These are a couple of weeks old, but my black tulips are still blooming….