A Fairy Pools anecdote

The Fairy Pools are a series of waterfalls and crystal-clear green/blue pools located on the Isle of Skye, Scotland. it’s an absolutely beautiful spot…highly recommended…My photos don’t do it justice, but you can check online for MUCH better ones.

We spent an entire morning there, walking slowly up the hill, taking in the views, stopping to admire the waterfalls and pools, aaaah and the colors!…and taking lots of photos, of course!

It usually takes about 45 minutes (each way) to complete the uphill walk without stopping, but how can you NOT stop? It’s simply stunning everywhere you look. The walk is deemed “Medium” for difficulty and includes a few river crossings over stepping stones, one of which would be quite slippery in wet weather…so please be careful!

One of the main things that slowed us down were the other visitors. The Fairy Pools were absolutely packed. Since it was an open area, though, that didn’t pose a problem, not a physical one, I mean. HOWEVER, since we didn’t want crowds of people to end up in all our photos (and the same, I’m sure, was true for them!), we had to wait for people to move out of the way, to let us by in some of the steeper areas, and so on.

It took a bit of time and a lot of patience. I don’t want to sound whiny: it was actually a perfect people-watching occasion…and at one point we even came upon a photographer who was wearing a kilt. Always fun, that!

The best moment, though, was when I looked down into one of the pools, almost directly below my feet, and watched in wonder as a sopping wet young man (a Scotsman), wearing nothing but bathing trunks and sneakers (compare that to Stefano who was wearing four layers of clothing, including a Gore Tex jacket!), climbed up the steep ravine. After reaching the top, he walked right past me and, to my complete surprise, JUMPED, as you can see in the ONLY blurry photo (above) that I managed to take with my cellphone. What a scary (exciting, too, I admit) moment! Jumping off those steep rocks to land with a splash into one of the Fairy Pools isn’t something that I would recommend, for sure…unless you know what you’re doing. This guy did, of course. But…brrrrrrrrrrrrrr, just the memory makes me shiver…

Before I forget (!), though, today’s anecdote has to do with our arrival. As we pulled into the Fairy Pools car park, which was almost full at the time (we got the last spot, right at the top), we noticed a sign telling us we had to pay to park…

While Stefano parked, therefore, I went off looking for an attendant or for a pay-and-display machine. I looked and looked, up and down the car park, but found…nothing except cars full of tourists looking for a spot…

Then I saw a Scottish guide standing by his van, waiting for his group of tourists to return from the pools. I figured he’d know what to do, so I went up to him and asked if he could tell me how/where to pay for our parking spot. He answered that the car park was free since it was a Sunday. 

Perfect!

I thanked him and prepared to go back up to the car to tell Stefano.

As I turned away, something on the ground caught my eye. A coin. A British pound. I pointed it out to the guide and said, “you’ve dropped a coin.” Before I could bend down to retrieve it for him, he said, “No, that coin isn’t mine. It’s yours!” I retorted, “no, it’s not. It must be yours.”

He grinned and, bending over to pick up the coin, said:

“If you find a coin, you’ll be lucky for an entire day. But if you find a coin and give it to a friend, you’ll be lucky for the rest of your life…”

He handed me the coin…

Memories of Scotland

Instead of going on and on about each place we visited in Scotland, I’ve decided to put together a series of anecdotes, cute or funny things that happened during our stay there.

First, though, here is a descriptive list of most of the places we visited, starting from Glasgow and ending in Edinburgh:

  • We spent a day and a half in Glasgow. To be honest, and I hope I don’t offend those who live there, as far as I could tell, there isn’t much to see, from a tourist’s point of view, except for the cathedral, but it’s very good for shopping, and it’s a very lively city. We also photographed a couple of excellent murals (photos 1 and 2). And we were lucky enough to happen upon a band practicing traditional Scottish music in a park for some upcoming event…marching up and down, twirling mallets, and that was lovely. I have a couple of videos of that encounter. Lots of fun. Oh, and I shouldn’t forget to repeat (see my September 4th post) that we had tea in our first ever cat café in Glasgow, the Purple Cat Café. I noticed it as we were driving around trying to reach our hotel. The navigator gave us the wrong directions, so we ended up driving around in circles a couple of times. And at one point during these “circles,” I happened to notice the sign, “Purple Cat Café.” If it hadn’t been for that batty navigator, we would have missed the café. Sometimes things just…happen! For a good reason, I mean! 🙂 
  • The Isle of Islay, which, in addition to some of the most important whisky distilleries in the UK, also has some very pretty villages and scenery (although nothing as dramatic as Skye). We spent three days there. It was here that I got quite high after a tour of one of the distilleries, and Stefano tried to make friends with what he thought was a hen but instead was a rather upset rooster. And we were also able to go have a look at the Kidalton Cross, see photo below, on the right, one of the finest and best preserved early Christian crosses, carved probably in the second half of the 8th century AD. 
  • One of my favorite photos is the above one (on the left) of a phone booth that was in the middle of “nowhere” on the Isle of Islay, but standing tall and proud, a testimony to the fact that these booths were absolutely essential BEFORE the invention of cellphones.
  • As we were walking down a path toward the 12th century, ruined Castle Sween (the day we left Islay…a stop we made on our way to the town of Oban), all of a sudden a doe jumped right in front of us (see September 4th post). We immediately froze, of course, so as not to scare her. We didn’t notice her two fawns until she’d disappeared into the vegetation to the right of us. We recovered enough to get some photos (in my case, blurry photos…I was too excited!) of the fawns, but I wish I’d been faster…
  • We stayed a couple of days in Oban, mainly so we could go on a all-day boat and bus tour of Mull, Staffa and Iona, three small islands with different types of appeal. We also visited a nearby fantastic ruined 15th century castle, Kilchurn Castle  (see photo on left), as well as a few other ruined castles (Dunollie, Dunstaffnage, and Stalker) in the area.
  • Inverlochy/Fort William. We spent a few days here mainly to check out some of the Harry Potter movie locations, such as the famous Glenfinnan Viaduct. I have a Viaduct anecdote that I will tell you in another post. So, no photos till then.
  • Eilean Donan Castle, see photo on left, one of the most famous and photographed castles in the UK. We stopped here on our way to Skye. Too many tourists…but still, it was worth the stop, for sure!
  • We spent five days on the the Isle of Skye. Best part of our tour, IMO. Here we hunted, and FOUND!!!, dinosaur footprints on two separate beaches. So much fun. In the photo on the right, I used my foot to show how big the prints are. This was left probably by a meat-eating theropod 170 million years ago more or less. You can find this footprint, marked by small stones by some kind-hearted person, at the An Corran beach at Staffin. The best time to view dinosaur prints, by the way, is in the winter, when they aren’t covered by algae. Since it wasn’t winter (although it was cold enough, at times!), we didn’t find that many…
  • We did find quite a number of prints belonging to plant-eating, long-necked, small-headed sauropods on another beach, the one located near another ruined castle (Duntulm Castle), see photo on left. The exciting part is that, following the prints, you can actually imagine these enormous creatures walking across the beach millions of years ago. Not easy to get down there (and then back up to the road, too), incidentally. Both the descent and the ascent are quite steep, I mean. I almost gave up, in fact…but I’m happy that I managed to climb down…
  • The best part of Skye, in my opinion, is its breathtaking and ever-changing scenery. So many photo ops! And, even though it wasn’t on my bucket list, I got to feed a Highland cow under the supervision of its owner…more on that in my upcoming “anecdote” post. 
  • Plockton, see panoramic photo on the right (taken with my cellphone), a very pretty little coastal village, up the coast from the Skye Bridge.
  • Drumnadrochit (Loch Ness). To be honest, we could have skipped this area, even though we stayed in the loveliest Airbnb of our entire trip. Anyway, now we can say, “been there, done that,” plus we got to spend an entire day at a Highland Game in Drumnadrochit, which was heaps of fun, sort of like being at a HUGE family reunion (the Scots are so friendly!), with adorable young girls doing traditional dances in kilts (see photo), big strong guys in kilts throwing extremely heavy items up in the air, bagpipe marches and competitions (see photo), and a final kilt race (I tried to get Stefano to participate, but he refused, I wonder why…….)…Yes, lots of fun. Highland Games, highly recommended!
  • Beauly Priory, a 13th century, roofless church.
  • Another 13th century ruin, but a much MUCH bigger and spectacular one: Elgin Cathedral. What can I say? Stefano and I prefer ruins to perfect (but at times a bit fake) restorations.
  • Dunnottar Castle. Again, yes, a ruin…on the northeast coast of Scotland, with ghosts, apparently, although we didn’t see or feel any…and yes, I do sound disappointed. 😉
  • Dundee, where we photographed the Desperate Dan (cartoon) statue, photo on the left.
  • St. Andrews Castle and Cathedral. Ruins, you guessed it! 13th and 12th centuries, respectively.
  • The village of Culross, of the (TV series) “Outlander” fame, also recommended by Rick Steves.
  • Stirling Castle, which we both found very disappointing…The best part were its lovely gardens…definitely could have skipped! The crowds didn’t help at all…
  • Edinburgh, for the final day and a half before returning to Florence…

I couldn’t help ending this long series of photos with one of a “Skye” goat that had just moved off the road so we could pass. He doesn’t look too pleased about it, does he?

That’s it for today! It has taken me a very long time to go through all my photos and get around to pulling together this first post…but I’ve had to deal with Peekaboo’s problems, too, in addition to other stuff, so that’s my “excuse.” Incidentally, Peekaboo is doing very well on cortisone. She’s walking almost normally now…I mean, she isn’t walking in pain (or in “prevention of pain”), that is, in slow motion, with her back end almost to the ground. No, she is walking slowly but surely now. She even jumped onto Stefano’s desk a few days ago!!!

I’m giving her cortisone AND curcumin. In the beginning, I was giving her just the cortisone, afraid that the curcumin might have a negative impact (you never know when you mix two things together…), but I found the opposite to be true. When I give her both (not at the same time, of course!), she walks much better and is clearly in no pain. I’ll be discussing this with the vet later on today…

Two cortisone stories involving Peekaboo and yours truly…

First, the news about Peekaboo. When I met with the vet a few days ago, he repeated that we wouldn’t be able to give her the current anti-inflammatory drug forever. Too bad, since she eagerly takes it in her wet food in the morning, and it seems to have no side effects. Oh well.

He suggested I substitute it with a drug called Contramal, which is basically Tramadol, and with another one that contains quercetin (I checked it out, it’s okay, so she’s on that now).

Tramadol is a different story. That’s the drug that Piccolo was on for some time last summer, and I am CONVINCED (although I have no proof, except for my own observations) that it played a role in the circumstances that led to his death. He had at least two strokes and went blind…and this all happened while he was on that drug. Now, sure, the strokes and blindness could have happened anyway. As I said, I have no proof. But do we want to risk the same thing happening to Peekaboo? No, we don’t. Stefano and I completely agree on that point.

So I needed to come up with a Plan B…another pain medication that would work as well, but without all the side effects.

After some online research, I found a possible solution on an official U.S. vet website: CORTISONE.

I called the vet surgeon, and, after various missed calls on both ends, we finally spoke yesterday. He agreed that it would be okay to put her on prednisone for little more than a week. I gave her the first dose this morning. Too early to tell if it is going to work, but my fingers are crossed…

Now for the second story, which is sort of related to the above. This really happened to me this summer while we were in Scotland.

First, some background. As many of you know, I’m allergic to cats, but I’m so in love with cats (as is Stefano) that we live with seven furry ones. In order to breathe, though, for years  I used a cortisone inhaler and always had emergency Ventolin on hand. Wherever I went…

Still do, actually. You never know.

Then, a few years ago, I read the story of a myeloma patient whose numbers improved, especially (as I recall) his red blood count, after he’d taken methylprednisolone for a cough that wouldn’t go away. I don’t remember the details, and even though I’m positive I wrote a post about this experience, I can’t find it now. Oh well.

The point is that at the time I thought that changing over to oral cortisone was an absolutely splendid idea. I mean, I’d be able to deal with two problems at once: my asthma and possibly some of my myeloma markers. Super!

With the approval of my family doctor, I began taking a low dose of Medrol. To be honest, I don’t think it has had an impact on my markers (I’d probably have to increase the dose to have such an effect), but it has changed my life in other ways. For example, I’m breathing much better and almost never need to use Ventolin, which can be tough on the heart (increases the heart rate)…No more cortisone inhaler, either.

But then we made our reservations for Scotland, and I had another brilliant idea.  Since I wouldn’t be exposed to cats there, I figured it would be a great time to take a breather from cortisone, which one shouldn’t really take long-term. And so I began decreasing my already low dose of Medrol, day by day. You’re not supposed to go off cortisone suddenly, not even if you are on a low dose…

July, however, turned into the month from hell after we found out about Peekaboo’s oral melanoma. I became completely focused on her and on what to do to save her life. I was so distracted by what happened to our cat that I’m now certain I didn’t decrease my daily dose of Medrol in the proper manner.

By the time we left for Scotland, I was off the Medrol entirely. No breathing problems, no side effects of the sort described online (vomiting, etc.), yippee! Yes, yippee. But almost immediately I began having difficulty walking. Pain. Pain located in my legs and feet. At times, it was hard to bear. For some reason, it got worse at night and often kept me awake or even awakened me. The only thing that gave me some momentary relief was aspirin.

In the beginning, Stefano and I ascribed the pain to my leading an essentially sedentary life. Of course my body would react to suddenly walking almost all day for kilometers, right? That made sense, but only in the beginning…not after the first week had gone by. By then, I should have gotten used to all the walking. Stefano also leads a mainly sedentary life, and he had no difficulties in that sense. Besides, nothing like this had EVER happened to me.

I began fearing that it might be the myeloma starting to rear its ugly head. That thought tormented me now and again, despite Stefano’s reassurances.

Well, now that we’re back in Florence, now that I’ve done a bit of online research, I’ve discovered what happened. Luckily, it has nothing to do with myeloma…

It has to do with my having stopped taking my Medrol without paying enough attention. Stupid of me, very stupid, but then again I have a “good” excuse: Peekaboo…

Solution: I’m back on the Medrol. And, quelle surprise!, the pain is gone. Gone gone gone. I’m sleeping just fine, have no problems walking, and so on. Life is good again. Ah, if only I’d figured this out while we were on holiday…No matter, I really enjoyed our tour of Scotland, pain or no pain!

Cortisone is a great drug when you need it, but it doesn’t come without (potential) consequences, especially if you decide to stop taking it for whatever reason. If you do want to stop, please take my advice: make sure that you don’t have any life distractions that might interfere with properly decreasing those daily doses…

I have certainly learned my lesson, that’s for sure!!! 🙄 

Back from Scotland

We’re baaaack! Back in Florence with our kitties, that is. Actually, we’ve been home since last Wednesday, but I’ve had lots of things to do, PLUS my computer wasn’t working properly, so Stefano spent the entire weekend fixing it, checking it out, updating programs, and so on. I’m so lucky to have him (in so many ways!)!

About our fabulous holiday in Scotland…so hard to decide where to begin…And so I’ve made a partial list of some of my fondest memories, as follows:

  • One of the funniest things: animals of all sorts (goats, sheep, chickens, cows…) in the middle of the road, chewing grass, completely oblivious to cars and other dangers. I have about 250 blurry photos taken of these encounters. 🙂
  • Speaking of encounters: one morning, while walking through a wood on our way to visit a ruined castle, we came across a doe and her two fawns. They popped out of the trees right in front of us. We froze, they froze, then the mother jumped across the path and disappeared into the trees. The rather fearful fawns just stood there looking at us (especially the one that isn’t in this photo). My biggest regret is that I was so startled that I didn’t start taking photos until the fawns began following their mother…Plus, it was a bit dark down there, so, yes, all my photos turned out fuzzy, as you can see. No matter…Fuzzy or not, these photos will remind me of that magical moment…
  • Sunshine, then rain, then clouds, then sunshine, then…well, you get the idea…crazy, fast-changing weather. But, as quite a few Scots told us on different occasions: “There is no such thing as bad weather in Scotland. There is only bad…clothes!” So true. And Stefano and I came well prepared in that sense…Gore Tex from head to toe…dressing in layers…so we had no problems at all. And we were so HAPPY to have escaped the horrendous heat back in Florence!
  • Speaking of the weather, we ended up being super lucky: it usually rained only at night or while we were driving from one place to another. For example, the morning we drove to Dunnottar Castle (a ruined castle on the north-east coast of Scotland) was horrible–rainy, and very cool and windy. But when we got to the castle, the rain stopped and didn’t resume until after we’d been to the castle and taken our photos.
  • The Scots. We met some lovely people, really really really lovely.
  • The Purple Cat Café in Glasgow (see photo of one of the 26 rescue kitties that live there). Trust me to come upon a cat café (our very first cat café, too) entirely by chance!
  • Driving on the other side of the road. Oh yes, I did! And, believe it or not, for the first time EVER. During all our previous trips to the UK, Stefano had done all the driving. I was too afraid of making a terrible mistake, wrong turn, etc., and getting us into trouble. This time, though, we had a bit of an emergency (more about this in an upcoming post), so I was forced to drive. Oddly enough, I wasn’t nervous about it and didn’t make any mistakes…not even on single track roads! Hah!
  • Harry Potter movie locations, especially the Glenfinnan Viaduct (we had an adventure there…again, see my upcoming post, which, er, I haven’t written yet!).
  • The views, some of which were absolutely breathtaking. Best views: on Skye. Oh I’d go back there in a heartbeat!
  • The colors…with the clouds racing across the sky almost all the time, especially on the islands, the colors of the landscape were never the same. So for instance you’d take a landscape photo, then the same photo in the exact same place just a few hours later, but the result would be completely different. I’d never get bored if I lived on Skye…And then, of course, I mustn’t forget to mention the colors of the Scottish gardens and flowers. Mmmmh…pure beauty.
  • Hunting for (AND FINDING!!!) dinosaur prints…on Skye…where else? 😉
  • Feeding a Highland cow…again, on Skye (yes, Skye Skye Skye…but those of you who have been there will certainly understand…). Feeding a cow wasn’t exactly on my bucket list, but this actually turned out to be one of the most amazing things I’ve ever experienced. Again, more about this in an upcoming post.
  • Going on a tour of a whisky distillery. Note: I don’t drink alcohol, generally speaking, although I don’t mind an occasional sip of a good Brunello di Montalcino. Stefano, however, is a whisky connoisseur, and so we spent three full days on the isle of Islay, the southernmost island of the Inner Hebrides, which is well known for its distilleries–Laphroaig, Lagavulin, Ardbeg, and a bunch of others. I finally gave in and accompanied Stefano on a TWO-hour (!) tour of Ardbeg, at the end of which some very amusing things happened. Upcoming post, upcoming post… 😉

I’m slowly going through my 2240 photos (Stefano took more than that: 3400 photos!) and will get around to posting a few of them…as soon as I have a bit of free time. Not this morning, though. This morning I’m meeting with the vet surgeon to talk about Peekaboo. When we got home from Scotland, as the cat sitter had warned us, Peekaboo wasn’t walking very well and spent most of the time in her comfy cat bed. On Friday I called the vet to see if I could increase the dose of the anti-inflammatory/pain drug, but he said no and also told me that we can’t keep giving her this stuff forever…He said we should meet to discuss the situation. Hence this morning’s meeting…

The day after we got home from Scotland, I began mixing some curcumin with her wet food. After just a few days, she began going downstairs and is now also walking a bit better…

This may be the solution…Another topic I’m going to address with the vet. I doubt he’ll be impressed, but you never know…

Anyway, lots to do and think about…And so many photos to go through! 😉

New test results and other bits of news

As you may recall, my April “andrographolide” results were disappointing, although some MM markers did improve. But my IgG jumped up quite a bit.

But now, incredibly, in just three months, and in spite of ALL the stress I’ve been under in the past weeks, my new, August test results are, well, excellent!!! My IgG has gone down to less than it was in 2012. Obviously, it’s still high, but it’s back to where I prefer it to be. 🙂

So I’m pleased. VERY pleased. Incidentally, all I took in this period was curcumin (the usual 8  grams a day) and Reishi, which has done well for me for the second time. Looks like I’m going to be taking Reishi forever!

So that’s some very good news…

Another topic. HOLIDAYS! Stefano and I have been sort of talking about going on holiday this year. Last year we didn’t have a holiday because, as you may remember, one of our cats, my beloved Piccolo, became seriously ill, and in fact we had to have him put to sleep in early September. My sweet boy…still miss him terribly.

Anyway, back to the point: we haven’t had a holiday in two years. So we’d recently been talking about going somewhere in Europe, and our choice fell on Scotland. We’ve only been to Edinburgh and, briefly, the Scottish Borders. Never been to the Highlands, Skye, etc.

We made our flight reservations, but then we found out about Peekaboo, and that whole process began. We didn’t think we’d be able to leave, but of course our priority was Peekaboo’s health…

As if cancer isn’t enough: a couple of days ago, I saw Peekaboo walking a bit “funny,” and then she screamed out in pain. Have you ever heard a cat scream in pain? Let me tell you, it scared the bejeezers out of me! I took her over to the vet hospital immediately, and they found a herniated disk. OUCH!!!

That’s all poor Peekaboo needed, after all she’s been through. So now she’s on an anti-inflammatory drug, which has anti-tumoral effects, too…

She’s not moving very much, but the vets told me that she should be out of the acute phase in a couple of days.

Luckily for us, we have a fabulous cat sitter who will be coming over a couple of times a day, plus our next door neighbor (one of my best friends) is going to check on the kitties every day, plus our vets have practically ORDERED us to go on holiday (seriously, they did!), plus, if anything happens (knock on wood!), the vet clinic will send someone over to the house to check on any of the cats…

So we’re all set, and we’re leaving for Scotland. Tomorrow, as it happens. I still can’t believe it…

My blog will be going on holiday with me. I won’t have a proper computer while we’re in Scotland, just an iPad, so it would be difficult for me to post anything. I’m going to take a break from everything, basically.

I will be checking Facebook, though, where my blog has its own Page (same name, Margaret’s Corner blablabla), so if you need/want to reach me, or if you just want to say “Hi,” please “like” that Page and drop me a note. Thanks!

(I love the “Keep Calm” messages…hehe.)

In the meantime, have a look at this interesting Science Daily report that a blog reader sent to me. It’s about the all-important issue of curcumin bioavailability…Yes, a rather unexpected, new delivery method has been found: goo.gl/9yg8s1

Take care, everyone! Ciao!

The margins are CLEAR!!!

Peekaboo, my 11-year-old cat, is such a star. Our amazing little star…And yes, in case you’re wondering, all of these photos are recent, post-surgery photos. Obviously, her right side looks better than her left, as you can see…But once her fur grows back, she’ll be as good as new (not that that’s the most important thing, of course!).

Here’s the most important thing:

Our vet just called to let us know that the final results of Peekaboo’s mandibulectomy (half of her lower left jaw was removed) show CLEAR MARGINS.

In other words, no cancer cells were found in the outer portion of her jaw, the portion that was removed. Had that happened, if even a few cancer cells had been found, it would not have been good news at all…

I have to confess that I got all choked up on the phone and could barely speak to the vet. Tears of happiness.

This has been such an emotional journey for Stefano and me. Just a few weeks ago, when this awful cancer was found in her mouth, by chance!, we didn’t know what to do: should we agree to the surgery? Is surgery the right decision for Peekaboo? What about her quality of life afterwards? Would she be able to eat without half her lower left jaw? We had so many questions…and so few answers.

But in the end, based on her test results, specifically her second CAT (hah) scan, we agreed to go ahead with the surgery. And now I’m so glad we did…

And yes, she is eating on her own again, eating like a horse, as you can see…

This final biopsy result doesn’t mean that Peekaboo will never have a recurrence of this beastly cancer…

But we’re not thinking about that now…

We’re celebrating today’s victory…

And she’s back to chasing her video mice again…

Forskolin: another natural compound goes on my list of myeloma killers

Yesterday I came across a 2015 study that really caught my attention. A group of Norwegian researchers has discovered that the combination of dexamethasone with a natural compound called forskolin kills multiple myeloma cells.

They tested forskolin with other conventional myeloma drugs, too: bortezomib (Velcade), cyclophosphamide, doxorubicin, and melphalan.

And by itself.

Results in a nutshell: dead myeloma cells.  😎 

Excerpt from the abstract: “Our findings support a potential role of forskolin in combination with current conventional agents in the treatment of MM.”

The researchers believe that forskolin might be able “to diminish treatment-associated side effects,” which of course would have a huge impact, obviously a very positive one!!!, on a patient’s quality of life…indeed, on the QOL of countless patients…

Of course, this is all theoretical, since the researchers used MM cell lines, not actual human beings. I checked the clinical trial website where I found only a few trials testing forskolin for various conditions, mostly eye, weight loss, and lung-related (interesting aside: there were a couple of cystic fibrosis studies there, too).

No myeloma clinical trials.

Are you surprised? I wasn’t. I mean, we know WHO finances almost all the clinical trials…and the ghastly rich and powerful pharmaceutical companies aren’t going to be interested in an affordable natural compound, are they?

No profit, no trial. It’s as simple as that.

And that is why non-toxic substances that might kill our myeloma cells without messing with our QUALITY OF LIFE are completely ignored…ignored even by our own MM foundations that should have our best interests at heart…It’s frustrating, to say the least…unbearably so, I admit, at times.

But let’s get away from negative feelings and focus instead on this potentially POSITIVE bit of news, which is that it seems we have another promising anti-myeloma tool. Yaaaaay!

Incidentally, the Norwegian study is fully available onlinegoo.gl/dRLgPg

So what exactly is forskolin? It’s a natural compound extracted from the root of an Indian plant called Coleus forskohlii. It has become popular in recent years as a weight loss supplement (the patient studies I glanced at early today, however, have mixed results). More importantly, it has been traditionally used in Ayurvedic medicine for centuries as a treatment for asthma, breathing disorders, and for general health purposes.

Contraindications. Generally speaking, forskolin is considered to be safe. However:

  • It may lower blood pressure, so definitely stay away from it if you have low blood pressure or are taking drugs for high blood pressure (beta-blockers, etc.). Of course, if you suffer from HIGH blood pressure, this might be of interest to you.
  • If you are on blood thinners such as warfarin or if you have kidney disease, forskolin is not for you.
  • It may also increase your heart rate and your levels of gastric acid.
  • There have been reports about possibly contaminated supplements in Europe.

Apart from these things, though, so far I haven’t read anything super negative about forskolin.

The big question is: will it work for myeloma patients? No idea, of course. As I mentioned, the Norwegian study used myeloma cell lines, not patients. But that hasn’t stopped me before, and it probably won’t stop me now…as long as my research keeps turning up positive information. Right now, though, it’s too hot here in Florence to think about experimenting with a new compound, which is good in the sense that it gives me time to do some further reading…

But I’m intrigued, really intrigued, and that’s a good start…

Hmmm, final (obvious!) thought: has anyone here taken this supplement? I’d love to hear from you! Thanks!

Curcumin eye drops

I’ve been reading and researching curcumin for almost 13 years now, but I am still amazed at all the things it can do…

A new study shows that it might be able to treat the early stages of glaucomagoo.gl/W98w8x

That’s music to my ears, since glaucoma runs in my family…hmmmm, my eye pressure happens to be normal…I wonder if my high intake of curcumin might have something to do with that?

Excerpt from the above-mentioned Science Daily article: “‘Curcumin is an exciting compound that has shown promise at detecting and treating the neurodegeneration implicated in numerous eye and brain conditions from glaucoma to Alzheimer’s disease, so being able to administer it easily in eye drops may end up helping millions of people,’ said the study’s lead author, Professor Francesca Cordeiro (UCL Institute of Ophthalmology, Western Eye Hospital and Imperial College London).”

Millions of people…

According to the researchers, curcumin may someday be used to diagnose Alzheimer’s disease…Well, how about that? This is indeed one of the most interesting articles I’ve read in recent times…

Light at the end of the tunnel

We brought Peekaboo home from the clinic almost a week ago, last Saturday evening to be exact. I thought that she’d slowly return to her usual self once she got home, but it has taken longer than expected. Reason: we ran into a few problems…

Problem number 1. Like most (all?) cats, Peekaboo was REALLY bothered by the Elizabethan collar, a cone-shaped torture device that prevents cats and dogs from licking or scratching or biting their wounds (Note: these three photos of Peekaboo are “post-Elizabethan-collar” photos. The white and red stuff around her neck is just a temporary bandage that doesn’t impede her movements and will come off next week).

Problem number 2. On Friday and Saturday, while she was still in the hospital, the vets had slowly weaned her off her pain medication. Too soon, evidently. By Sunday evening I knew she was in pain. She wasn’t purring or licking food off my finger anymore, so we had to feed her, and administer her meds (antibiotics, etc.), using the esophagostomy tube, which is a feeding tube that connects the esophagus directly to the stomach.

Furthermore, she was very lethargic and wasn’t moving at all, really. And she hadn’t used the litter box at all (even though we put one right on the bed).

I called the weekend vet who told me to give her more of the anti-inflammatory drug, which contains a painkiller, too. There wasn’t much else we could do on a Sunday evening, but first thing on Monday morning I took her back to the vet hospital, where they ran some tests and immediately gave her a shot containing a stronger painkiller. I gave her painkiller shots twice a day until Wednesday (at home). That at least got rid of the pain issue!

She peed inside the cat carrier in the car…so, er, that problem was solved, too! And in fact, as long as she wore the blasted cone, she peed only when we drove to the vet hospital. 🙄 

On Wednesday afternoon the surgeon removed her feeding tube. Consequently, off came the cone!

Life was good again. Peekaboo was back to her old self–happy, relaxed, hungry, and curious. Since then, it’s been all uphill. JOY!!!

Without the awful collar, in fact, she began eating and drinking on her own…she started peeing (etc.) in the litter box, not in the car (!)…she’s grooming herself (as you can see in photo no. 3), and she purrs and talks a lot…

So she’s doing really well. One of my MAIN concerns, in fact, before agreeing to the surgery, was HOW she’d be able to eat without half a jaw…But she is indeed eating–wet food only, right now–and it is such a joy to behold…Cats are such amazing creatures…

More good news: we have some partial biopsy results (from her jaw, which of course was sent off to the lab for testing):

  • the cells aren’t dividing madly, as aggressive cancer cells do.
  • there are indications that this type of melanoma is NOT aggressive.

This means that, IF the surgeon was able to remove every bit of the tumor, and IF no cancer cells have migrated to another part of her body (the lungs, usually), from now on she will lead a normal, healthy life.

Of course, these are big “IFs,” and Peekaboo will have to be monitored for some time…with periodic X-rays of her lungs, for example.

But for now, at least, Stefano and I can sit back and relax…

Quick update on Peekaboo

I took our cat, Peekaboo, to the vet two days ago, around lunchtime. When her new CAT scan results came in, my vet told me that, even though the melanoma had spread a bit in the past two weeks, the cancer hadn’t gone into the jawbone yet. She recommended that we do the surgery.

After asking a few obvious but almost-impossible-to-answer questions (will the surgery PROLONG HER LIFE without impacting her QUALITY OF LIFE, blablabla), I called Stefano, and we both agreed it was our only choice at this point, even though there really aren’t any guarantees: this sort of cancer is very aggressive, so it may come back at some point…

But if we’d waited until, say, September, it would have been too late to do anything. And by then she would been suffering a lot…bleeding from her mouth, etc. I’ve seen the photos online…It’s nasty.

We had to try removing the blasted thing…

In a nutshell: the surgery went well. No complications. Now we just have to wait until she’s well enough to come home. That will happen once she begins eating on her own, which is going to take a few more days…

Yesterday Stefano and I went to see her twice, at lunchtime and just before dinner. I braced myself, expecting her to look like a little Frankenstein, but no, she actually looks the same (see photo). Not that we care what she looks like, of course! As long as she’s okay…

She’s not a happy camper, as perhaps you can tell from the photo. She’s NOT in any pain, of course, but I think the Elizabethan collar is driving her bonkers. Plus, the painkiller/sedative is making her live in a world of her own. I don’t know how much she even knew that we were there…

My job is to get her to eat on her own again. So at one point I put some mushy food on my finger and offered it to her. She turned her head, growling (growling? My Peekaboo???), got up and moved away. Who can blame her? Poor sweetie. I didn’t insist. I’ll try again today. As soon as she begins eating on her own, we can bring her home, where she will be happier and recover more quickly, for sure.

I just hope the vet surgeon was able to get all of that blasted thing, that no cells escaped, and that there will be no recurrences…

One day at a time.