Reaching out to all MGUS, SMM, MM patients and caregivers

Last week I was contacted by Stephen Quinn, a Ph.D. student at Queen’s University in Belfast. He informed me about a study called IMPaCCT whose intent is to look at the effect that the current Covid-19 crisis has had, and is having, on pre-cancer, cancer and rare disease patients and their caregivers. The researchers, which include Stephen, hope to be able to use this data to inform patients and caregivers, as well as publish their findings in scientific journals.

He asked for my help in reaching out to smoldering myeloma and MGUS patients. Of course! So, how can we help? By taking their online SURVEY. I am about to do that, in fact. It should take about 20-30 minutes. No big deal, if we can help others, right? So please do it!

Here’s the direct link: https://www.surveymonkey.co.uk/r/IMPACCTsurvey?fbclid=IwAR0JwWQPa8Md6VjJ_3KBCDBGGdZEClXB77SqK348s7Gh-hDbEns9_B7qgE0

Please note that if enough people respond to the survey, this Queen’s University group will be able to provide pre-publication information to charities/groups so that they can better support their members during these challenging times.

So this is really important. Please take the survey! Thanks, everyone! 

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