I wonder if these case reports will ever catch the eye of our MM organisations, which, unfortunately, are so heavily sponsored by big Pharma…Doubtful… 😕
Well, Margaret, this is intended to be a celebratory post, and I really don’t have the energy to dive into THAT discussion again. It’s just so bloody frustrating that sometimes I have to let off some steam. But no, not today. Today is a super good day!
A new case report, led by Terry Golombick (if you don’t know who she is, you can do a search of my blog…she’s one of my favourite people on the planet…!!!), shows that a patient with intermediate/high-risk MGUS who has been taking curcumin for 16 years has had “a decrease in disease markers and an increase in uninvolved immunoglobulins.”
Fabulous. Absolutely fabulous.
The study is available online for free (love that!), so you can have a look for yourselves…not hard to read, either: https://journals.sagepub.com/doi/10.1177/15347354241242099
16 years, eh? That made me realise that I’ve been taking curcumin now for more than 18 years, which means that this patient began just a couple of years after I did…AND a year after I began blogging. I wonder if I know him…Hmmm…I believe I must, but I have so many readers now that of course it’s hard to keep track of all of you…
Please do get in touch with me, Mr. Fabulous Patient, if you happen to read this post. I’d really love that. Thanks! 🙂
Interesting bit: Mr. Fabulous Patient took a very small amount of curcumin every day, only 2.3 grams a day, divided into two doses, which seems to confirm that we all have a different reaction to curcumin. I also guess that it might (must?) depend on WHEN you begin taking it…It makes sense, to me at any rate, that curcumin would have a stronger effect on a MGUS patient than an SMM one, e.g.
Food for thought.
The study concludes: “This case study adds to the body of evidence that curcumin administration may benefit some patients diagnosed with MGUS with little or no toxicity even after 16 years of therapy.”
Yes, indeed…no doubts about that in my mind!!!
I am incredibly happy for Mr. Fabulous Patient as well as for those of us who have been doing so well on curcumin … Today is definitely a day of celebration!!!
Take care, everyone. Oh, and, if you have the time, please go read the study and send me your comments…Thanks!
I was diagnosed with SMM 3 years ago and am still ‘watch and wait’. Kappa Light Chains have crept up slowly but nothing else. I have loads of other conditions (OA, Hashi’s, Diverticulitis, hypertension etc but at 70 am managing to keep my life together… however I seem to be quite flooded with information and struggling to know what supplements to take! At the moment I just take basic supplements plus extra turmeric. What its the optimum Circumin I could take – it certainly looks promising…. Thank you so much! Fiona
Margaret states that she takes 8 grams a day. 4 in am, 4 in pm. She has the info in a couple of posts. If I find it I will add the link. Curcumin c3 is the type. Drs Best is the brand used in the Australia studies. Dr Terry Golumbick, Australia, provides consultations with review of your blood work. Virtual appointments. Mgus-therapy.com I think is the website. She may be a helpful resource for you too. She initially suggested that I take 4 grams a day. Her studies are with 4 grams and 8 grams. Her fees are very very reasonable.
Love all the cat pictures!!
I’ve heard mixed messaging on “treating” MGUS and “using up” resources you may need should it turn to myeloma…who can predict. Congrats to the patient (and YOU, Margaret) for all those great years you’ve gotten.
Dear Margaret: thanks for a great study report. I have had MGUS for over 10 years and it progresses very slowly, so I dont worry about it too much, being 93 years old. Thanks to you I have been taken Curcumin for years and will continue ding so, since kit appears to help with aging well. Please keep us informed and keep well yourself , Beatrice