I have an exciting announcement for all curcumin-takers with MGUS, SMM or MM! Please go to the Beating-Myeloma website (http://beating-myeloma.org/) and fill out the form for the Curcumin Patient Study! (See my September 7th post for a bit more information on this informal patient study).
Once you reach the B-M homepage, you will find the CPS listed under Patient Studies, on the left-hand side of your screen. Click on that link, and follow the directions. It’s easy. Only we have access to our data, so we can add updates whenever we get new test results and so on.
For some reason, today I had to scroll down the page to view the list of those (eight of us curcumin-takers) who have already filled in the form. So if you see a blank page, just scroll!
Anyway, in order to participate in the CPS, you must be a B-M member. If you are not, please sign up first (it’s free). As a member, you can also sign up for the forum/listserv, where discussions range from alternative to conventional and complementary myeloma treatments. It’s a very very very friendly group of myeloma patients (all stages) and MM patient caregivers, so I urge you to join.
As David (the founder and owner of the B-M website) wrote in a post to the MMA listserv yesterday, this is not a rigorous trial but a collection or snapshot of mmers who take curcumin often along with conventional therapies like thal/dex or velcade. Experiences range from MGUS diagnosis changing to smoldering and IgG diagnosis in complete remission experiencing improving numbers…
While this is not a formal myeloma clinical trial, if enough of us participate we may gain some interesting and potentially important information about curcumin. So, whether your experience with curcumin has been positive or negative, please fill out the form. The more, the merrier!