I have had a mgus for 9years,when first diagnosed ,i had severe bruising ,weight loss and was given cyclophosfomide,nephechristine and solumedral,ALSO there was von willebrandts (aquired) which caused me to have several bleeds and severe bruising.This stablelised after chemo and the protein electrophoresis test showed 3 ,the first being 7,i have never felt 100%, but the bruising and kidney bleeds stablelised.Recently however I started experiencing weight loss,loss of appetite due to evening nausea,also extreme fatigue There has been an increase in the level to 6 and my haemotologist wants me to have bone scans.My body feels achy and I just feel unwell,the nausea is really getting to me.I know that there is something wrong..im worried this could be progression of the mgus.What do you suggest?
Hi. I’m not sure where to post a general question here. This looks like an excellent blog with lots of good info. I have had dx MGUS for about seven years, though I’m sure it started 10 or so years ago. I’m 58. It’s climbing now, it was 1.2 when dx, and at last checkin had jumped four numbers to 2.2. So I have to start doing something! Supplements, and thanks for your recommendations here on those; I’m also working with an ND who is giving me lots of Standard Process supp’s to fight cancer (plus a thyroid condition). My questions are kind of general at this point: Has anyone here heard of or tried the Budwig protocol? Specifically the flax oil/cottage cheese mixture? I am starting to do that. I just wonder if it would be effective here. Also, diet: anyone find that the raw food, vegetarian way of eating is helpful? Is it really that important to give up meat, like some of the anti-cancer books say? I have a hard time without a lot of protein. Thanks for being here, Joy
Really love your blog Margaret! Just wanted to say you made 3rd place in CureTalk’s top 10 MM blog list! http://trialx.com/curetalk/2011/06/top-10-blogs-written-by-multiple-myeloma-heroes-that-you-should-read/ All the best and looking forward to more great blogs! - Kim
Thank you for this blog. I was diagnosed with smoldering myeloma on May 6, 2011, so my journey is just beginning. Your blog has been an immediate source to turn to for information…and for hope. Thank you so much. Jenn Holland Erie, PA USA
Thought this was interesting as saffron is mentioned along with curcumin and black cumin http://defeatosteosarcoma.org/2011/12/saffron-spice-fights-liver-cancer/ Ron
thank you so much beautiful Margaret. i found you researching curcumin bioavailability for a different health problem which i have chosen to treat thru the kind of continuous research which you are doing. i guess you must spend as much time on PubMed as i do, but i am very happy (is it the turmeric?!) to find the other sites you mention. just found a new to me one- naturalpedia- might be good.
I got back my first lab while on curcumin. I was taking Meriva 250mg SR one twice a day for eleven weeks.My monoclonal spike remained at 1.2 and my Kappa light chain went from 4.10 to 3.83 mg/dl. The lambda light chain went from .99 to .85 mg/dl so the K/L ratio actually jumped from 4.14 to 4.51. I am thinking about going to 250mg Meriva SR two caps twice a day Last June my monoclonal spike was 1.0 g/dl and my Kappa Light chain was 2.73mg/dl, and Lambda light chain was .71mg/dl with the K/L ratio being 3.85. So the jump from last June until the December lab was pretty large. I started the curcumin about two weeks after the December lab. Ron
Hi, Margaret, I think it could be interesting for you to read this article. Have a nice day http://www.nytimes.com/2013/02/12/science/testing-of-some-deadly-diseases-on-mice-mislead-report-says.html?_r=0
I have had a mgus for 9years,when first diagnosed ,i had severe bruising ,weight loss and was given cyclophosfomide,nephechristine and solumedral,ALSO there was von willebrandts (aquired) which caused me to have several bleeds and severe bruising.This stablelised after chemo and the protein electrophoresis test showed 3 ,the first being 7,i have never felt 100%, but the bruising and kidney bleeds stablelised.Recently however I started experiencing weight loss,loss of appetite due to evening nausea,also extreme fatigue There has been an increase in the level to 6 and my haemotologist wants me to have bone scans.My body feels achy and I just feel unwell,the nausea is really getting to me.I know that there is something wrong..im worried this could be progression of the mgus.What do you suggest?
Joan Biggs
30 Jul 10 at 2:45 pm
Hi. I’m not sure where to post a general question here. This looks like an excellent blog with lots of good info. I have had dx MGUS for about seven years, though I’m sure it started 10 or so years ago. I’m 58. It’s climbing now, it was 1.2 when dx, and at last checkin had jumped four numbers to 2.2. So I have to start doing something! Supplements, and thanks for your recommendations here on those; I’m also working with an ND who is giving me lots of Standard Process supp’s to fight cancer (plus a thyroid condition). My questions are kind of general at this point: Has anyone here heard of or tried the Budwig protocol? Specifically the flax oil/cottage cheese mixture? I am starting to do that. I just wonder if it would be effective here. Also, diet: anyone find that the raw food, vegetarian way of eating is helpful? Is it really that important to give up meat, like some of the anti-cancer books say? I have a hard time without a lot of protein. Thanks for being here, Joy
Joy
29 Mar 11 at 10:38 pm
Really love your blog Margaret! Just wanted to say you made 3rd place in CureTalk’s top 10 MM blog list! http://trialx.com/curetalk/2011/06/top-10-blogs-written-by-multiple-myeloma-heroes-that-you-should-read/ All the best and looking forward to more great blogs! - Kim
Kimberly Blozie
17 Jun 11 at 10:47 am
I meant 2nd place!!! Even better
Cheers - Kim
Kimberly Blozie
17 Jun 11 at 10:48 am
Thank you for this blog. I was diagnosed with smoldering myeloma on May 6, 2011, so my journey is just beginning. Your blog has been an immediate source to turn to for information…and for hope. Thank you so much. Jenn Holland Erie, PA USA
Jennifer Holland
20 Jun 11 at 5:45 pm
What test would be available to a layperson to determine plasma and tissues level of ingested curcumin?
Jim Voeller
10 Nov 11 at 10:52 am
Thought this was interesting as saffron is mentioned along with curcumin and black cumin http://defeatosteosarcoma.org/2011/12/saffron-spice-fights-liver-cancer/ Ron
Ron
10 Feb 12 at 10:10 am
thank you so much beautiful Margaret. i found you researching curcumin bioavailability for a different health problem which i have chosen to treat thru the kind of continuous research which you are doing. i guess you must spend as much time on PubMed as i do, but i am very happy (is it the turmeric?!) to find the other sites you mention. just found a new to me one- naturalpedia- might be good.
lee
6 Mar 12 at 9:05 pm
Thank you Margaret for everything you do! inge
inge
13 Mar 12 at 1:39 pm
I got back my first lab while on curcumin. I was taking Meriva 250mg SR one twice a day for eleven weeks.My monoclonal spike remained at 1.2 and my Kappa light chain went from 4.10 to 3.83 mg/dl. The lambda light chain went from .99 to .85 mg/dl so the K/L ratio actually jumped from 4.14 to 4.51. I am thinking about going to 250mg Meriva SR two caps twice a day Last June my monoclonal spike was 1.0 g/dl and my Kappa Light chain was 2.73mg/dl, and Lambda light chain was .71mg/dl with the K/L ratio being 3.85. So the jump from last June until the December lab was pretty large. I started the curcumin about two weeks after the December lab. Ron
Ron
21 Mar 12 at 11:20 am
Hi, Margaret, I think it could be interesting for you to read this article. Have a nice day http://www.nytimes.com/2013/02/12/science/testing-of-some-deadly-diseases-on-mice-mislead-report-says.html?_r=0
H.O.
14 Feb 13 at 9:26 am