Comments on: April blood test results http://margaret.healthblogs.org/2008/05/14/april-blood-test-results/ Life with Myeloma Wed, 20 Aug 2008 19:07:57 +0000 http://wordpress.org/?v=2.5.1 By: Patricia http://margaret.healthblogs.org/2008/05/14/april-blood-test-results/#comment-3946 Patricia Fri, 23 May 2008 05:41:10 +0000 http://margaret.healthblogs.org/2008/05/14/april-blood-test-results/#comment-3946 Dear Margaret, two months ago I was terrified, loosing my hair. My dermatologist ask for a blood test and my ferritin was 3, since then I´m taking one iron pill with a just squeezed orange juice, empty stomach. It´s working. I have a good new about my curcumin experience, I few months ago y had a toxic hepatitis, because of the interferon, so I stopped taking the 2 gram curcumin (I took it during the treatment). Once my liver was recovered, I began with the curcumin protocol again, I´m taking 3 grams at this time. My recent blood measure indicates that my liver is ok, even better than my last measure (April 4th). I´m going to the U.S.A. in 3 weeks.....I´ll buy my curcumin for one year!!! I can´t find it in Spain. A big kiss! Dear Margaret, two months ago I was terrified, loosing my hair. My dermatologist ask for a blood test and my ferritin was 3, since then I´m taking one iron pill with a just squeezed orange juice, empty stomach. It´s working.
I have a good new about my curcumin experience, I few months ago y had a toxic hepatitis, because of the interferon, so I stopped taking the 2 gram curcumin (I took it during the treatment). Once my liver was recovered, I began with the curcumin protocol again, I´m taking 3 grams at this time. My recent blood measure indicates that my liver is ok, even better than my last measure (April 4th). I´m going to the U.S.A. in 3 weeks…..I´ll buy my curcumin for one year!!! I can´t find it in Spain.
A big kiss!

]]> By: minnesotadon http://margaret.healthblogs.org/2008/05/14/april-blood-test-results/#comment-3841 minnesotadon Fri, 16 May 2008 02:27:50 +0000 http://margaret.healthblogs.org/2008/05/14/april-blood-test-results/#comment-3841 Well Halleluja! Looks to me like STABLE is indeed the word. Down would be better, but every stable interval is a blessing. Go Margaret! Well Halleluja! Looks to me like STABLE is indeed the word. Down would be better, but every stable interval is a blessing. Go Margaret!

]]> By: Robert http://margaret.healthblogs.org/2008/05/14/april-blood-test-results/#comment-3831 Robert Thu, 15 May 2008 21:03:32 +0000 http://margaret.healthblogs.org/2008/05/14/april-blood-test-results/#comment-3831 Thanks for your reply Margaret. I definitely agree with you about standardization. Wouldn't that be much better and easier for everybody, professionals and non-professionals? Hm, well - something globalisation haven't touched yet... Robert Thanks for your reply Margaret. I definitely agree with you about standardization. Wouldn’t that be much better and easier for everybody, professionals and non-professionals? Hm, well - something globalisation haven’t touched yet…

Robert

]]> By: Margaret http://margaret.healthblogs.org/2008/05/14/april-blood-test-results/#comment-3824 Margaret Thu, 15 May 2008 15:51:38 +0000 http://margaret.healthblogs.org/2008/05/14/april-blood-test-results/#comment-3824 Hi Donna, No, my M-spike is measured from a serum sample, and I don't have a kappa/lambda ratio. Curious thing: I used to think that leukaemia was leukaemia (period), and of course I had never even heard of myeloma (my..what?)! But once you are diagnosed, things change, don't they? I have to confess, though, that I know very little about other types of myeloma. My type is IgG kappa. That said, even though I am not a medical doctor, I agree with you about the lovely sound of "no monoclonal protein detected" and think that is worth a huge celebration! Good for you! :-) Margaret Hi Donna,
No, my M-spike is measured from a serum sample, and I don’t have a kappa/lambda ratio.
Curious thing: I used to think that leukaemia was leukaemia (period), and of course I had never even heard of myeloma (my..what?)! But once you are diagnosed, things change, don’t they? I have to confess, though, that I know very little about other types of myeloma. My type is IgG kappa.
That said, even though I am not a medical doctor, I agree with you about the lovely sound of “no monoclonal protein detected” and think that is worth a huge celebration! Good for you!
:-) Margaret

]]> By: Donna http://margaret.healthblogs.org/2008/05/14/april-blood-test-results/#comment-3823 Donna Thu, 15 May 2008 13:53:33 +0000 http://margaret.healthblogs.org/2008/05/14/april-blood-test-results/#comment-3823 I too find it difficult to compare my test results with others. My M-Spike is measured from the urine sample. Is that how yours is determined? I live in the U.S. and my onc measures M-Spike mg/dl with a Kappa/Lambda ratio. Normal ratio range is 0.26-1.65. I have SMM and my ratio has remained stable at 0.02. I have Bence-Jones, so that's probably not so good. My serium light chains are measured mg/L with a Kappa/Lambda ratio of 0.26-1.65. Is this the same thing? It appears in a different place on my test results. On my last test results was a statement that read "No momoclonal protein detected." That sounds good to me! How significant is that? I'd appreciate your feedback. Thanks, Donna I too find it difficult to compare my test results with others. My M-Spike is measured from the urine sample. Is that how yours is determined? I live in the U.S. and my onc measures M-Spike mg/dl with a Kappa/Lambda ratio. Normal ratio range is 0.26-1.65. I have SMM and my ratio has remained stable at 0.02. I have Bence-Jones, so that’s probably not so good. My serium light chains are measured mg/L with a Kappa/Lambda ratio of 0.26-1.65. Is this the same thing? It appears in a different place on my test results. On my last test results was a statement that read “No momoclonal protein detected.” That sounds good to me! How significant is that? I’d appreciate your feedback. Thanks, Donna

]]> By: Margaret http://margaret.healthblogs.org/2008/05/14/april-blood-test-results/#comment-3817 Margaret Thu, 15 May 2008 09:43:48 +0000 http://margaret.healthblogs.org/2008/05/14/april-blood-test-results/#comment-3817 Hi Robert, it's hard for me to comment on anybody else's test results since at times it's hard for me to figure out my own results! I find it a bit frustrating that there are so many differences between labs. Even within the city of Florence, different hospital labs have different normal ranges. Doesn't make any sense to me. It should all be standardardized. Oh well. Your 64 g/L of total protein would be equivalent here to 6.4 g/dL unless my math is off. So that may help in your comparison to my results, that are quite a bit higher. What's your normal range? Here it is 6.0-8.6 g/dL. Interesting that your m-spike is calculated in %. Here the m-spike is g/dL. I seem to recall that in the U.S. it is also g/dL. It's the monoclonal component here that is a percentage. I wish I could give you some useful suggestions. Hard to do, though, for obvious reasons. In my case, well, I am very lucky because if I want to have a new test done I just have to ask my family doctor and he (usually) writes out the request. But some doctors aren't as lovely and understanding (and smart!) as mine. I suppose in your case I wouldn't worry about things too much. With MGUS, I had blood tests every 6 months, and now, if I were not experimenting with different supplements (but I am!), I wouldn't have tests done every 2 months. That is to say, if you have B2M and other markers tested every 6 months, that's fine. Just my opinion! :-) Take care! Margaret Hi Robert, it’s hard for me to comment on anybody else’s test results since at times it’s hard for me to figure out my own results!
I find it a bit frustrating that there are so many differences between labs. Even within the city of Florence, different hospital labs have different normal ranges. Doesn’t make any sense to me. It should all be standardardized. Oh well.
Your 64 g/L of total protein would be equivalent here to 6.4 g/dL unless my math is off. So that may help in your comparison to my results, that are quite a bit higher. What’s your normal range? Here it is 6.0-8.6 g/dL.
Interesting that your m-spike is calculated in %. Here the m-spike is g/dL. I seem to recall that in the U.S. it is also g/dL. It’s the monoclonal component here that is a percentage.
I wish I could give you some useful suggestions. Hard to do, though, for obvious reasons. In my case, well, I am very lucky because if I want to have a new test done I just have to ask my family doctor and he (usually) writes out the request. But some doctors aren’t as lovely and understanding (and smart!) as mine.
I suppose in your case I wouldn’t worry about things too much. With MGUS, I had blood tests every 6 months, and now, if I were not experimenting with different supplements (but I am!), I wouldn’t have tests done every 2 months. That is to say, if you have B2M and other markers tested every 6 months, that’s fine. Just my opinion! :-)
Take care!
Margaret

]]> By: Robert http://margaret.healthblogs.org/2008/05/14/april-blood-test-results/#comment-3799 Robert Wed, 14 May 2008 22:28:17 +0000 http://margaret.healthblogs.org/2008/05/14/april-blood-test-results/#comment-3799 Hi Margaret! I also got my latest tests back. Now, I know that different labs use different measures, but some things really are very different (or is it just me not getting it right...). In our lab they measure M-spike in percent, in my case it varies from 4 - 6% with total protein at about 64 g/l. BUT - I don't know why my hematologist doesn't check it regularly on my 8-week controls. Besides blood cells counts for her the only important indicators are Ig kappa light chains and Ig lambda chains and their ratio that she calculates from the lab results and it should be less than 5:1 (mine is 2,7:1). She's also interested in urea (uric acid) and creatinin. I wasn't checked for the beta-2 microglobulin, nor for albumin or gamma globulin. Those were last checked in February. As I work in the hospital I get serumprotein electrophoresis done every now and then from a friend that works in the lab. But it's not ordered officially from my hematologist. For now, thank God, my MGUS seems to be stable. But I hope that monitoring "only" with these tests is enough to get the picture. Any suggestions? Congratulations on your good list! :-) May it be longer next time. Best wishes, Robert Hi Margaret!

I also got my latest tests back. Now, I know that different labs use different measures, but some things really are very different (or is it just me not getting it right…). In our lab they measure M-spike in percent, in my case it varies from 4 - 6% with total protein at about 64 g/l.
BUT - I don’t know why my hematologist doesn’t check it regularly on my 8-week controls. Besides blood cells counts for her the only important indicators are Ig kappa light chains and Ig lambda chains and their ratio that she calculates from the lab results and it should be less than 5:1 (mine is 2,7:1). She’s also interested in urea (uric acid) and creatinin. I wasn’t checked for the beta-2 microglobulin, nor for albumin or gamma globulin. Those were last checked in February.
As I work in the hospital I get serumprotein electrophoresis done every now and then from a friend that works in the lab. But it’s not ordered officially from my hematologist.

For now, thank God, my MGUS seems to be stable. But I hope that monitoring “only” with these tests is enough to get the picture. Any suggestions?

Congratulations on your good list! :-) May it be longer next time.

Best wishes, Robert

]]> By: winnah http://margaret.healthblogs.org/2008/05/14/april-blood-test-results/#comment-3785 winnah Wed, 14 May 2008 15:33:34 +0000 http://margaret.healthblogs.org/2008/05/14/april-blood-test-results/#comment-3785 You are not wishing for the impossible. You are slowly changing it into an infinite possibility! Good going. You are not wishing for the impossible. You are slowly changing it into an infinite possibility! Good going.

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